RP Will Not Define Me!

By morning after I was diagnosed, I had gathered myself together and decided to figure out this disease. It was not going to define me! The more I studied it, the more I felt blessed. We had been treating it for a year without knowing that I had RP, we were just trying to keep me from going blind. More gratitude seeds were blossoming. My ending of my life story is changing and I can give it a brand new finale. We prayed for guidance and expressed our gratefulness for the blessings that we have so abundantly received.

The wonderful thing about praying is that you leave 

a world of not being able to do something, 

and enter God’s realm 

where everything is possible.
He specializes in the impossible.
Nothing is too great for His almighty power.
Nothing is too small for His love.
-:- Corrie Ten Boom -:-

What should I do now? Do I tell people? When do you talk about your diagnosis?

 

We found out that I have relapsing polychondritis (RP) right before Christmas in 2018. Now, that’s not when I started getting sick, far from it, but prior to that we thought I might have an autoimmune disease that could go into remission. I wasn’t going to tell my adult children about relapsing polychondritis because I didn’t want to put a damper on the holiday season for them.  I was going to keep it to myself until I knew what to say but that thought got altered.

At a Christmas party with some of my husband’s most dear friends he confided in them that I was a very sick gal. I think he needed someone other than me that he could share his feelings with. Our children also have connections with these lovely people and my heart ached at the thought that my sad news could possibly get back to my family.

I am blessed with some incredible daughter in laws and one was very tuned into the fact I was trying to hide some new health news. She lovingly pried it out of me. In her wisdom far beyond her age she encouraged me to tell my sons and daughter about it so they could better understand why I am so very different than the mom they have known all their lives. See Three Ring Circus-Symptoms.

“Courage doesn’t mean you don’t get afraid.
Courage means you don’t let fear stop you.”
-:- Bethany Hamilton -:-