Relapsing Polychondritis

Relapsing Polychondritis
What is Relapsing Polychondritis (RP)?

Thursday, September 19, 2019

It Begins


 
When do you start talking about a diagnosis that has rearranged the plans for your future? Do you write about it, at the very beginning when you are still stunned by the news, or do you wait until there is a plan set out and some experience with wisdom to provide? I'm still on my journey of discovery but hopefully I can be of some help to you.

Right before we left on our mission in 2015 things started to happen.  I had problems with pain in my hands, hip, knees and my feet had problems for years. My General Practitioner (GP) didn’t know why I hurt and I went on to ignore the pain like I always did when I didn’t feel well. Things started to feel broken.

Tinnitus had started buzzing through my ears, it was only really bad when everything was quiet. Unexplained pain would start in my right ear, go behind my eye and across my nose. Sometimes the pressure was so strong it was hard to lift my head off of the pillow.  My ears and sinuses were checked and I didn’t have any infections. My nose and ears would go red and my eyes were always bloodshot. Looking back at my photos, I would be squinting more often than not, I can tell my face was in pain. Foreshadowing of things to come. See Three Ring Circus-Symptoms.


"For beautiful eyes, look for the good in others;
for beautiful lips, speak only words of kindness;
and for poise, walk with the knowledge that you are never alone."
-:- Audrey Hepburn -:-

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